Wednesday, November 16, 2011

Day + 50

For those that were asking - please continue to send mail to the following address

City of Hope
Patient- William Klopper
1500 Duarte rd
Duarte CA 91010



William and I are hoping to return home for a few days next week.... We really don't want to sound Thanksgiving here :( but, then we will return for continued treatment.



William is doing well, he still continues to receive multiple transfusions per week but, this is all part of his body recovering and restoring itself after going through so much. Even though we are no longer in the hospital, we are still at City of Hope and living in a small onsite condo. Our current accommodation is part of the Hospital's Hope Village, a small community of houses that provides long distance transplant patients and care providers a reliable, safe, sterile, and affordable housing.



I think I have mentioned this before, but in case I have not....The City Of Hope is an AMAZING. I am truly proud of this place! The doctors, professors, child life, social workers, nurses, volunteers and counselors are all truly dedicated to the mission of curing cancer and providing the best treatment.



A huge thank you, and humble gratitude to the Drias family. They recently went to Jerusalem for Josh's Make a Wish trip and while they were there, Josh placed a prayer for William at the Wailing Wall. Below are photos. Thank you Drais family - you guys had me in tears of gratitude when I read your email.

Saturday, November 5, 2011

Update on scan results and future treatments

My apologies for the delayed posting, it has taken me almost 5 days to get an affirmative answer and agreement amongst from all doctors involved in Williams health, future treatment and results from the scan.

Scan results -
Yes, the results showed that there were NO tumors that "light up" on the PET scan which means that the tumors are dead/calcified.
HOWEVER, the doctor did remind me that just because the tumors themselves are dead, it does not mean that we are "cancer free" zone. There are still microscopic cancer cells that "hide" and/or become dormant. The presence of these cells are a major concern because it only takes 1 cell to grow into a monster of a tumor, and because it is DSRCT the cancer is aggressive and spreads extremely fast.

Future treatment-
Starting in mid-December William will be receiving the treatment listed below. In an attempt kill any lingering cells, from all possible angles the different treatment techniques listed below will all be combined into 1 potent cocktail/treatment road map. The total estimated time of treatment will be for 6 months to 1 year.


Treatment 1.
Angiogenesis inhibitors
Angiogenesis is a normal and vital process in growth and development of blood vessels. However, it is also a fundamental step in the transition of tumors from a dormant state to a malignant one. To inhibit angiogenesis and prevent tumor growth (new or existing) William will be receiving 4 daily oral medications. The drugs are:
-Temodar (temozolomide) - basically this is a low dose, maintenance chemotherapy.
-THALOMIDTM (thalidomide) - really strong angiogenesis inhibitor.
-Accutane (isotretinoin) - Normally a prescription Acne drug, also a angiogenesis inhibitor.
-Celebrex (celecoxib)- Normally a prescription arthritis drug, also a angiogenesis inhibitor.

Treatment 2.
Whole Liver Radiation
Number of treatments will depend on how his body recovers from the bone marrow transplant and also the above mentioned angiogenesis inhibitors.

Treatment 3.
Nutrition
Dr. Anderson recently witnessed one of his oncology doctors/friend go through testicular cancer and he witnessed the benefits of Ph Balance eating habits and taking supplements. So, once we get out of here, We will once again return to our Ph Balanced, no gluten, no sucrose/dextrose/glucose, raw fruits and vegetable lifestyles :)

Ooh and I almost forgot to mention that the best part of this treatment plan is the fact that it is all OUTPATIENT, meaning that unless there is infection, fever, and/or complications, we won’t be spending nights in the hospital..YIPEE!