Tuesday, April 24, 2012

Terrible, terrible truth.

From Mommy, Loiss.


Hi all. I want to thank everyone for the love, prayers, supportive words, and loving thoughts.

As my mom mentioned in her post on Friday, we are inpatient at City of Hope.

I don't have any creative, frilly, beautiful words to describe or poeticly phase what it is that we are all going through. All I can say is that my baby is nearing the end, and that my heart hurts to the extreme.

Williams little body is so weak, frail and heart breaking. BUT his heart and spirit stay true to the warrior he is. The tumors are starving his body, they are causing him pain, and they have hijacked his organs, but William keeps on keepin' on. Even through the pain, the heartache, the fear, the reality I still see the strong, silly, fun loving, caring and kind nature of Sir. William

William's comfort is the number 1 concern for everything and everyone. He is getting a continuous IV cocktail of pain medication and Ativan to help calm and relax him.

Randell and I have bridged the conversation regarding death and heaven. The first conversation was the hardest and William stated that he was not yet ready to talk about it. The next day he opened up a little more and he asked questions about heaven, why people died, who would be waiting for him, how he would talk/communicate with us when he wanted to ask us something. He asked if God gave the angels special powers and if so, if God would allow him to use his special powers to keep firefighters and pilots save. He cried a lot, we all cried a lot. He is scared about dying, we are doing everything we can to ease his fears and give him peace.