There is no place like home.

William and I are going home for a week. YIPPEE ... Since treatment has been postponed, the doctor has been kind in allowing us to spend some much needed time with Randell ;)

Rumor has it that there will be a snow storm in the Sierra Mountains this weekend.. I am so excited. I cannot think of a better way to spend the weekend than to be surrounded by home cooked food,  the company of both my boys, playing in the snow, and as always - Making happy memories.

William is recovering well from the Sepsis. His body also seems to be having an easier time with the c-diff, unfortunately the combination of the c-diff and sepsis has caused some weight loss and I am once again struggling to add weight back to his little body - He is down to 51 pounds.

This is William's journey, and we will Keep on Keepin' on with God in our hearts and His courage in our souls.

Good times.

William was released from the hospital on Friday. I am happy to report that both of the gram positive bacteria he tested positive for appear to be responding well to the antibiotics treatment.

Dr. Anderson and I have discussed the decision to postpone scans and radiation. Sepsis (blood infection) tends to cause swollen lymph nodes and organs. If we were to proceed with scans this week the reading MD could see the swollen nodes and/organs as being cancer related. Also, the reading MD could overlook something thinking it was related to sepsis when in fact it could be related to the cancer. So, with a hard lump in my throat I have agreed to wait 2-3 weeks before proceeding with the scans.

As you know, when it comes to William`s future treatment, I am a nervous and anxious momma. Postponing scans and radiation has been a hard reality for me to accept. Refusing to lounge around the Hope Village and dwell on the “what ifs, and then what’s?” I decided to occupy our time – and my mind-with some adventure. William and I spend Saturday driving up Pacific Coast Highway spotting possible hiking spots and familiarizing ourselves with some of the best seafood in Santa Monica. On Sunday morning, William`s honorary uncle, D, and his girlfriend joined us for what turned out to be an extremely memorable day. William hiked Pacific Cove, chased seagulls, collected sea shells, and wrestled with his uncle. The day was ended with a couple of hours in the arcade at Santa Monica Pier and some of the best Gumbo I have ever tasted. (My appreciation and gratitude to Jerome for inviting us into his home, for great food, good wine, and excellent company)

So, what started out as a weekend bordering on tears, broken nerves, anxiety, and fears, ended in a weekend filled with happy memories, good friends and William`s laughter.

As always, we will Keep on Keepin' on. We will live strong with God in our hearts and His courage in our souls.

Frustration and Nerves.

Since Monday night, William has been inpatient at City of Hope.. On Monday morning William spiked a sudden high fever. Symptoms included stiff neck muscles, headache, dizziness, nausea, increased heart rate and low blood pressure. To rule out Meningitis, the doctor did a lumbar puncture and ordered blood tests.

I am relieved to say that the tests came back negative for meningitis. Williams blood tests did unfortunately test positive for Gram Positive bacteria in his blood. Actually, he tested positive for 2 Gram Positive infections.

The good news is that the antibiotics that have been prescribed will able to fight the infections and should have William healed in a few days. Unfortunately, the antibiotics will almost certainly cause the C-Diff to return. The return of C-diff will cause a delay in radiation.....SIGH.

I don't like postponing treatment. The thoughts and nightmares that come to mind about the disease relapsing is HORRIBLE.

Please pray that the cancer stays away and dead. Please pray that the blood infections are healed and that the C-diff does not return.

This is Williams journey and we will keep on keepin on with God in our hearts and His courage in our souls.