Day 14

It's hard to believe that two weeks have passed since we were first admitted into the hospital. Two weeks ago our day started with an appointment with a new pediatrician to discuss some of the concerns that I had. One hour later William was at Marshall Hospital getting ultra sounds and by 2pm that afternoon we were being admitted into Sutter Hospital. 14 Days since we learned he has cancer, 11 days since we found out it was DSRCT. It’s so easy to lose track of time. My days are starting to blend together and I often have to look at my cell phone to figure out the date and day of the week. I have made a promise to myself and William that I will not allow my child to become a "zombie" and do nothing else but watch TV all day long while in ICU. The lack of mental challenges and interaction is not a good a thing so I am making a point of actually using some of the great puzzles and games that we have received! I am also trying to get us back into a "normal" routine (similar to what we had a home) TV off by 6pm dinner between 6-7pm, bath time between 7-8pm, family time/TV time between 8-8:30pm lights off no later than 8:30pm. Our lack of routine is taking its toll on all of us and it is most apparent on William’s sleep patterns. He tends to take several naps during the day and then at night, he does not sleep for any periods longer than an hour. I am sure his body, mind and spirit will all benefit from a good normal routine and a great night’s sleep. I just got done with my morning meeting with Dr. Falco (ICU Dr.) William’s fluid output for yesterday was negative 600! WOW, So far he is negative 200 for today! This is great news and hopefully his little body will continue to get rid of the excess fluid. Surgery is no longer something that we will be considering. William’s ANC and WBC is still at zero, we were told that they should start to slowing climb back up in the next week. Round 2 of Chemo will start around 4/24 and he will have some more scans, MRI, EKG, etc. on 5/2. Keep on Keeping on.