Day 24

Yesterday grandma and I spent some much needed time together outside of the hospital. The stress and emotions between the two of us tends to sometimes be directed towards each other so we decided that we would have a mother and daughter afternoon outside of the hospital. Randell was at the hospital with William while we were out and from what we heard upon our return, the two of them had an eventful afternoon. Grandma Leonna and Grandpa Ron came by yesterday and spent some time with William. From what I heard William was getting extremely spoiled! I spent the night at home last night with Randell and when we returned to the hospital this morning we had the best surprise ever! William was standing outside at the entrance waiting for us! To make things even better William was in great spirits and wanted to see the fat squirrels that aunt Erin and I have been telling him about, so we walked across the parking lot and spent about 20 minutes feeding the spoiled squirrels! The sunshine and laughs were amazing! I want to give a great special THANK YOU to Eddie Sota and his family! Eddie was William's Cub master (he has now moved on to boy scouts with his son). Eddie has been so gracious and giving! Eddie pulled some strings and called in some favors and got William an autographed jersey and photos from Billy Volek (San Diego Chargers) William also got a 3D Dinosaur Puzzle and a short range DIY Radio. (our biggest and most fun source of entrainment right now) William is having a great day today! He is eating YIPEE (first time in three weeks)!!!!! So far today he’s had 1 Madeline from Starbucks, 1 Dill Pickle (small) 1 bite of daddy’s smoked salmon, 1 Go-Gurt, and a few nibbles from some dried mangoes! His taste buds are completely messed up from Chemo so the only things that taste good are pickled or spicy. Hopefully we can get him to start eating more “healthy” food soon. Another piece of great news, we have moved out of the ICU! William is now back in the Pediatric Oncology section of the hospital in room 663. Ultrasound from yesterday showed that the mass in William’s bladder is not getting smaller. On Monday the Dr. will do a procedure with a little camera to see if he can see the mass and figure out exactly what it is and how to get rid of it. Round 2 of chemo was supposed to start tomorrow but, this has been put on hold until the bladder is free from any obstructions and healthy enough to withstand another heavy dose of P6-Protocol. I want to thank everyone that has graciously donated funds into William’s account, kept us in your prayers, provided us with emotional support, and/or provided us with a shoulder to cry on