Day 26

A lot of fun things have happened in the last 24 hours! Yesterday afternoon Hazel (our favorite dog) came by for a nap and visit with William. William also had a friend, Aidin, from cub scouts come by for a visit and William had an opportunity to make a bear (through Build-a-bear) His bear is actually a frog and we named it Frenchie! This morning, William took a walk with Grandma and his Physical Therapist. They walked the perimeter of the hospital and then across the parking lot to the Sharing House where I spent the night last night. In Addition the walk this morning, William and I have walked downstairs to the gift shop, two round trips to the play room and once to the vending machine. Our estimated combined total for today is 1 mile!!! WOOOOHOOO. William's appetite is also picking up again. So far today he has had 1/2 a jamba juice, 4 grapes, 4 bites of my stew, 1/4 of a twix bar. Our goal is to have him eat at least 500 calories in a day. Round 2 of chemo will be started on Wednesday. Tomorrow William will start a 48 hour continous flow of Menza (protects the bladder from chemo). Although the mass in the bladder is not gone, the Drs are confident that it will dissolve by itself and therefore does not pose any threat, just the discomfort of the constant catheter blocking. Yes, there is a chance that round 2 of chemo could damage his bladder a little more, but the risk of not starting chemo soon is that the tumors grow more and spread further. From what the Drs told us this morning, if all goes well with this round of chemo then we can anticipate William going home around 11th. So basically our chemo calendar is as follows: Day 1 - April 28th - Chemo Starts Day 2 - April 29th - Chemo 2nd Day Day 3 - April 30th - Neuprogin Shot Day 4 - May 1st - Neuprogin Shot Day 5 - May 2nd - Possible Neutropenic Timeframe (Randell’s Birthday) Day 6 - May 3rd - Possible Neutropenic Timeframe Day 7- May 4th - Possible Neutropenic Timeframe Day 8 - May 5th - Tumor Scans Day 9 - May 6th - Neutropenic Day 10 - May 7th - Neutropenic Day 11 - May 8th - WBC Should Rise Day 12 - May 9th - WBC Should rise (Mothersday) Day 13 - May 10th- WBC Should Rise Day 14 - May 11 - GOING HOME!!!!!!!! Once we go home we will be able to be there for 5-7 day periods before we have to come back to hospital for additional chemo rounds. Right now it is anticipated that we will need 6 rounds of chemo but, this all depends on the how the cancer reacts to the chemo. Thank you for all the love and support! Keep on Keepin On. Livestrong.