The great part about doing chemo on an
outpatient basis is the fact that William is now once again able to participate in cub scout events. Last night we attended a den meeting and William was presented with two red beads that count towards his progress and rank. ;) I am so proud of my little man. Even though we have spent a ridiculous amount of time in hospital during the last 10 months, he still progresses towards the accomplishment of achievement of his Bear Cub rank. The much anticipated Pinewood Derby race is in 8 days. Two of our hospital buddies, William M. and Spencer P. are also cub scouts and they will have their races around the same time that William has his so, all three boys will be keeping track of their race times and the next time they see each other they will compare times amongst themselves and determine who had the fastest car :)
I have an update on our quest to find a Sarcoma Center. Yesterday I received a call from City of Hope and it looks like they might be interested in treating William. So as a preliminary action plan, William and I will be spending the first week of February in LA during which time we will have consult meetings and tests with the oncology teams at City of Hope, UCLA Jonsson, and Cedar Sinai . I am still waiting to hear back from CHLA and CHOC, hopefully they return my calls and emails soon. I am most interested in hearing back from Dr. Marcio Malogolowkin who is apparently an internationally renowned expert in liver tumors and pediatric cancers. Dr. Malogolowin is the Division Head of Pediatric Oncology/Hematology at CHLA.
I want to remind everyone about the wonderful fundraising event that will start on February 1st. Jeff Gonsalves, author of the Subnorm series will be donating the profits from all February sales to William ;) Books can be purchase on Amazon .
Keep on Keepin' on. Live Strong in God's promise of healing and miracles.
2 comments:
Hi guys! It warms my heart to hear about William's cub scouts! Such a wonderful organization and I'm so glad you get to have some fun with it!! :D Thanks Lois for keeping up with the updates. I love reading them. Does this new site have notification of new posts through email?
Hello friends, There is always so much information in your blogs, and I truly enjoy reading them. I am praying that William will be able to get the treatment he needs on your next journey to LA, if that is where you decide to go. William is such an amazing little boy, and I pray that the cancer cells shrink with this 11th round of chemo. Most importantly for William though I hope that he maintains his health and gets to race his box car with the Scouts! GO WILLIAM!!! I can’t wait to hear how the Green Hornet does and to see pictures or video too! I may not get to see you or talk to you nearly as often as I would like to, but I am still hear praying for strength and healing for your family. I love you guys!
Post a Comment