Saturday, February 12, 2011

The best day ever!

Today one of our hospital buddies, Kaleb Phillips, had a fundraiser at Airsoft Battlegrounds. Some of the activities and attractions at the event included face painting, jumping castles, airsoft battles,  various karate demonstrations, photo booths and food vendors.

From all of the conversations leading up to today I knew that William was excited; however, I did not expect the amount of energy that came exploding out of his little body! From the time we arrived at 11am until the time we left at 3pm, William was constantly running around, participating in all the events and having an absolute blast.

William officially finished chemo on Thursday night and knowing that his platelets have not yet been affected, Randell and I decided that it would be okay for him to participate in the Airsoft games. For those of you that do not know, Airsoft is a team sport similar to paintball where replica firearms shoot plastic BB rounds. The location we were at today was an indoor arena specially designed for the game. William did two rounds and had an amazing time.  Yes, it does hurt. Yes, William was shot. Yes, William has bruises. Yes, William had a lot of fun!

Somehow even after almost a full hour of running around playing airsoft games, William still had enough energy to bounce around on a jumping castle, participate in jousting games and get his face painted.

Here are some of the photos from today............

 

William and Kaleb!
Kaleb is 7 and he is fighting his second battle with Rhabdomyosarcoma.

While we were driving home this afternoon William exclaimed that he had the best day ever!  The comment and the memories we have from today is the reason why we keep fighting. The laughter, giggles, smirks and smiles is the emotional fuel that we all needed to refill our emotional gas tanks!

It is sometimes necessary for me to function with my emotional fuel gage on empty so I am grateful for today's refueling because not only did it fill me up, it provided me with some reserves ;) I read something the other day that stuck with me "You don't know how strong you can be, until being strong is your only option"  The strength I have is not always shown or expressed in ways that are appreciated by everyone and this leads me to something that I need to say ----------

Even though this blog was intended to communicate William's medical treatment and updates, it has become so much more. The blog has been a journal of my thoughts, fears hopes and dreams. It has been a memoir of events, both happy and sad. It has been a medical journal for treatment options, and it has been a dictionary of explanations and terminology. What this blog was never intended for was the use of a weapon or a tool to be used against me or my boys.

Lately, I feel like there may people out there that criticize and judge me. Some criticism has to do with William's medical treatments, some of it has to do with my relationship with Randell, and some of the criticism even surrounds my intentions with this blog. Sometimes the criticism is valid and I will do my best to correct the error. Yes, there are a whole lot of raw emotions and feelings floating around and it is sometimes easy to loose sight of love, compassion and forgiveness. What I am trying to say is that during the last 10 months I have been consumed with William's diagnoses and somehow, without my intention to do so, I have neglected important relationships.  I don't want to make excuses for the lack of contact, the missing connection or the missed opportunities, what I want is my apology to be heard and for all the anger to just go away!  I am exhausted and I struggle for the energy to defend my family, my relationships and my decisions. My apology is sincere and I hope everyone accepts it.

Keep on Keepin on. Live Strong in God's love!

5 comments:

Tracy said...

Loiss~
First of all, I'm so happy that you and William had such a great time. You all needed it :)

That being said...mom to mom...I know exactly what you mean about judgement and disappointment. I've been dealing with cancer for over five years now...going on six. First with mine and then my son's.

I'm going through a divorce because I couldn't give my husband the relationship he needed. My son came first and I never want to leave his side....not even to give myself some time for more than a couple of days at a time. It is consuming. But if I don't take care of him I will hate myself and anyone else who makes me feel like he doesn't deserve to be first. It has put a strain on other relationships as well. I won't date nor do I care to.

The best description that I can give that perhaps you can relate to is this: I don't want to be alone but I want to be left alone. Left alone to take care of my child who so desperately needs me. Who may not be there for very much longer. Don't make me choose because it will always be my child.

It happens....I don't know why things happen as they do but they do.

Do what you can do. The priority is William....and it will continue to be until you are out of this dark abyss that absolutely no one can relate to until they have personally been there too.

Much love to you my friend :)

Kimberly LePore said...

Loiss,
Your blog is exactly what it should be! We want to know how you are doing too. We are so glad you guys had a good day! Judging is for God to do. There is not a human being on this planet that is perfect. God bless you and focus on the best days ever instead of what everyone might be thinking of you. Live life to the fullest and expect a miracle!
We love you guys!
Love,
Kimberly, Matthew, Caleb, and Hayden LePore

Unknown said...

Loiss and loved ones,

Your friends and loved ones will be there for you no matter what, with a kind and understanding heart. As for the rest....they apparently have thier own battle to struggle with and it is not yours to focus on. Smile, love, and belly laugh when you can :)!!!
Jennifer A

Stephanie Grobler said...

Dearest Loiss,
I dont know who these people are or what they have said but I look forward to your blog every day. Even though we don't see eachother or talk as much, you and your family are in my thoughts and my prayers every single day. I love to hear happy William stories and cry when they are sad. O.k. Ill be honest I cry when they are happy too! I just want you to know that I love you and your family. And I have so much respect for you and the struggle God has faced you with. You are an Amazing woman with an Amazing son and you have touched all our hearts. Please keep doing the wonderful job you are doing with this blog. I look forward to every word. I love you!
Stephanie

Whitney said...

Hello friends, please don't let others judgements get in your way. No one has a right to judge until they spend a week in your shoes. Everyone has different lives and values and that is why everyone is different and you accept and love people for who they are no matter what. That is just what you do as friends. I love your family and what you guys are doing is working for you, that is all that matters.

As far as William playing the Airsoft game, all I can say is that is AWESOME! I can imagine the grin on his face from ear to ear. What an amazing and fun day! I love the pictures and hearing about his endless energy. What an inspiration!

I love your blog for the good news and the bad, the adventures, the dreams and even the emotion.

Livestrong
XOXOXO
Whit