Monday, March 21, 2011

It's just not fair!

This weekend the DSRCT community lost another of its family members. Taylor was a 19 girl who had been fighting DSRCT for a little more than 3 years. Last year on her 18th birthday she finished her last round of treatment and was NED (No evidence of disease) for a few a months when the disease suddenly returned again.

For the last three weeks Taylor endured a collapsed lung, breathing and draining tubes, kidney failure, immense pain and constant vomiting; not once did she ever give up! Taylor fought a brave battle until the very end.

I ask that everyone please keep Taylor's mom, Kendra, in your prayers!

Since November the DSRCT community has lost about 10% of its family members (Less than 100 known surviving patients world wide and less than 500 ever diagnosed) I can't help but feel an immense sadness and hopelessness. I despise this horrible cancer and I despise what it has done to so many people. My heart is broken today and I can't seem to find the energy to force a smile.  I try to hide my crying for William because he is not really aware of how serious this disease is, nor am I about to tell him. The last thing I want him to know is that a person with is same disease had earned her angel wings.

I am so frustrated!!!I am angry and I am so terribly sad...It's not fair that there is a mom in Texas that is planning her daughters funeral! It is not fair that so many other people that go through live unaffected by all the horrid events that us DSRCT moms experience on a daily basis. It's not fair that this disease only allows for a 15% chance of 5 year survival. It's not fair that my son is sick and I cannot do a darn thing to heal him. It's not fair that William has cancer!


Taylor does have a caringbridge page, for those of you that would like to leave some encouraging words
http://www.caringbridge.org/visist/taylorhargrove


On Friday night (March 25th) GiftToCure will be hosting it's first annual Masquerade!
The event will be"unmasking" DSRCT. We need every one's support to make this event a success! Event will include a live Jazz band, silent auction, food, drinks, and local celebrities!
Please attend and support GiftToCure in it's quest to fund DSRCT research!
Tickets must be purchased online at
http://gifttocure.givezooks.com/events/black-tie-masquerade-unmasking-dsrct-an-elegant-fundrai

I would appreciate it if you would please tell all of your friends and family members about the event!



Keep on Keepin' on.
Live Strong in God's promise of healing!

2 comments:

Unknown said...

Hi Loiss, Yes, everything about DSRCT is so sad and unfair. I have been following William's story since you first posted. And every other DSRCT warrior. And sweet Taylor Hargrove. What suffering! I rarely respond because my 34 year old son died almost 6 1/2 years ago from DSRCT. So I feel you don't need to hear that and I also wish I could say something to make you and all the others feel better.
I guess we can just hope that William is one of the lucky ones. And why shouldn't he be?! I think of you often.
Warmly, Bonnie Krotkov

Donna said...

*HUGS*

Sometimes they are far more appropriate than any words....