This afternoon William received his first negative lab test results for c-diff YEAH! Finally, after an exhausting (and stinky) month filled with fevers, dangerous blood pressure, antibiotics, extreme weight loss, and thousands of sad tears, William's gut is stabilizing and healing. Getting rid of the c-diff means that we finally overcame one of the largest obstacles we faced in qualifying for the transplant...I cried happy,exhausted, and celebratory tears when we received the results...
Last night in the midst of a medicine induced sleepy haze,William got up to use the bathroom and collapsed/fainted/fell. Thankfully, in the few seconds it took me to reach him, his PCA (patient care assistant) walked in and was able to alert the doctor and tend to William. Luckily William did not get hurt and after a full exam and tests the doctor felt comfortable that there was no damage, or concussion, only a bruised hip. Chances are that the incident was brought on by William getting up and out of bed too fast causing his blood pressure to dramatically shift. Anyway, there is a small likelihood that William may have something called peripheral neuropathy. Peripheral Neuropathy is a side effect of Vincristine, one of the chemotherapy drugs that William has received a multitude of. My "mommy instinct" tells me that this is not the case so I am not worried - the doctor on other hand would like to do some more tests before he will make a determination.
Some more good news- we get to go home (Ronald McDonald House) tomorrow. Next week William will go through some tests for the Peripheral Neuropathy, and God willing, everything goes well and we will be able to return home to Randell by the end of the week. If we are fortunate and blessed with the opportunity to return home, We will be able to remain there until the time comes for us to return to City of Hope for the dreaded Disease Assessment tests and determinations. However, should something happen this week that will prevent us from returning to Randell, it will only be a temporary restriction. The doctor has assured us that he will allow us the much needed, wanted and deserved time to go home to Northern California before we start with the Disease Assessment.
Thank you everyone for your love, support, friendship and continues words of wisdom. We hope everyone enjoys the rest of their week!
This is William's journey and we will Keep on Keepin on' and Live Strong with God in our hearts and courage in our souls.
No comments:
Post a Comment