My apologies for not updating sooner. William and I are at home, enjoying some much needed ‘normality’. William’s transplant was originally supposed to happen on the 11th, but thankfully the transplant team agreed to our request to postpone the procedure by 7 days. Yes, the postponement was a good thing. On September 10th, Randell, William, and I attended the Capital Air Show, and as you can imagine William had an absolute blast! I am so happy that William was able to attend. As you already know, William is a huge fan of all WWII aircraft, so it was an absolute delight when we realized that the airshow hosted a special Pearl Harbor bombing reenactment. Seeing the Japanese Zero Bombers flying in formations, and experiencing the smells, sights, and sounds of ‘bombs’ (pyrotechnic special effects) made William an extremely happy boy with a big goofy smile.
The transplant process is scheduled to start on Sunday the 18th. Transplant day will be +10 days after William gets admitted. This is our anticipated calendar:
| 9/18 | Day -9 | Admit. Start anti seizure medication, Dilantin |
| 9/19 | Day -8 | High Dose Chemo. Busulfan for 6 hours & Topotecan continuous |
| 9/20 | Day -7 | High Dose Chemo. Busulfan for 6 hours & Topotecan continuous |
| 9/21 | Day -6 | High Dose Chemo. Busulfan for 6 hours & Topotecan continuous |
| 9/22 | Day -5 | High Dose Chemo. Busulfan for 6 hours & Topotecan continuous |
| 9/23 | Day -4 | High Dose Chemo. Busulfan for 6 hours & Topotecan continuous |
| 9/25 | Day -3 | High Dose Chemo. Melphalan |
| 9/26 | Day -2 | High Dose Chemo. Melphalan |
| 9/27 | Day -1 | Rest |
| 9/28 | Day 0 | TRANSPLANT |
| 9/29-10/1 | Day +1 through +4 | Rest |
| 10/2-10/6 | Day +5 though +10 | G-CSF injections |
| 10/11 | Day +15 | engraftment anticipated. |
There is equal excitement and anxiety in my heart about the upcoming transplant. I am extremely happy that this process is finally happening but, at the same time I am nervous about all the anticipated side effects. The side effect that has caused me the most tears, sadness and anger, is William’s infertility. It saddens me to realize that William will never be able to father a child of his own. Cancer has stolen so much from William already, why does it need to steal the future life of his children? Yes, I realize that in the grand scheme of things, William’s infertility is a small price to pay for his survival and living a cancer free live. I need to remember to focus on the positive.
This is William's journey and we will Keep on Keepin on' and Live Strong with God in our hearts and courage in our souls
No comments:
Post a Comment