We have been in the hospital for 30 days and I think it's safe to say that we are ready to get out of here!
I am happy to report that williams mouth is healing well, and so is the rest of his body :) Engraftment occurred around day + 11 and although the cell and marrow production has been excuciatingly slow, I am thankful for every little bit of progress!
Our goal for the week is for William to remain fever free, eat a minimum of 500 calories a day, drink 1500ml of water a day, and to get some daily exercise/walks. If we can meet all the goals, we will be discharged of Friday. Once we are released, we will move into bungalows located on the hospital grounds(Hope Village) The benefit of staying in the medical housing is the availability of urgent care nurses, and immediate access to transfusion clinic. We will be living at the Hope Village for the 4-6 weeks.
Our first post-transplant scan is scheduled for next week. The data from this scan will be used to determine if any further treatment(radiation etc) will be needed to combat any remaining cancer cells. Obviously we pray that the scan shows NED (no evidence of disease)
For the past several days We have been fortunate to have Randell with us, having the family together is such a great thing!
A huge thank you to everyone that has been sending letters and cards!Williams wall is postered with all the mail he has received:)
This is William's journey and we will keep on keepin' on with God in our hearts and courage in our souls!
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