Thursday, December 29, 2011

Quick update!

I am happy to write that we were fortunate enough to spend Christmas at home. Actually, William and I have been spending a lot of time at home. Unfortunately, we have also spent a lot of time traveling back and forth to the hospital for routine appointments and transfusions. As you can imagine the eight hour commute (each way) is exhausting.  Yes, the 16 hour commute gets daunting, but it is well worth it when we get to spend nights in our own home and in our own beds.

Health wise William is doing really great. Although he still requires two platelet transfusions per week, his energy level and personality seems to be at an all-time high! From what I can tell it seems like we have been able to successfully treat Williams's tummy problems (c-diff). Yippee! Tuesday (next week) we will be returning to the City of Hope as long term resident outpatient patients. We will once again stay in one of the onsite apartments and prepare ourselves for the upcoming treatments. My understanding is that the tentative plan starts with a set of scans and radiation measurements / markings. Radiation itself will start a few days after the prep is done, and the Angiogenesis inhibitor treatments will start at approximately the same time.

I will update the blog again within a week. Until then, keep on keepin' on with God in our hearts and His courage in our souls!

Monday, December 19, 2011

Overdue Update

Wow, I can't believe that it has been a month since I updated the site.....but as always, no news is good news.

Since our last update William has been struggling with c-diff (yes, it returned again) Due to the intestinal problems that usually result from radiation, the treatment team has decided to postpone radiation and angiogenesis inhibitor treatment - proceeding with treatment while he has c-diff can be extremely dangerous. We are hopeful that by the end of December the c-diff will be gone (for good) and treatment can proceed as anticipated. It's been three months since the bone marrow transplant conditioning - Considering how aggressive this cancer is, I get anxious about moving forward and not giving the cancer the opportunity to return.

Our continued treatment will occur at City of Hope in southern California. Our hopes of receiving the treatment closer to home has not become a reality - HOWEVER, I am a huge City OF Hope supporter and am therefore I am not really disappointed at the prospect of staying here.

Please continue to keep William in your prayers.

This is William's journey, and we will keep on keepin' on with God in our hearts and His courage in our souls.