I am happy to write that we were fortunate enough to spend
Christmas at home. Actually, William and I have been spending a lot of time at
home. Unfortunately, we have also spent a lot of time traveling back and forth
to the hospital for routine appointments and transfusions. As you can imagine
the eight hour commute (each way) is exhausting. Yes, the 16 hour commute gets daunting, but it
is well worth it when we get to spend nights in our own home and in our own
beds.
Health wise William is doing really great. Although he still requires two platelet transfusions per week, his energy level and personality seems to be at an all-time high! From what I can tell it seems like we have been able to successfully treat Williams's tummy problems (c-diff). Yippee! Tuesday (next week) we will be returning to the City of Hope as long term resident outpatient patients. We will once again stay in one of the onsite apartments and prepare ourselves for the upcoming treatments. My understanding is that the tentative plan starts with a set of scans and radiation measurements / markings. Radiation itself will start a few days after the prep is done, and the Angiogenesis inhibitor treatments will start at approximately the same time.
I will update the blog again within a week. Until then, keep on keepin' on with God in our hearts and His courage in our souls!
Health wise William is doing really great. Although he still requires two platelet transfusions per week, his energy level and personality seems to be at an all-time high! From what I can tell it seems like we have been able to successfully treat Williams's tummy problems (c-diff). Yippee! Tuesday (next week) we will be returning to the City of Hope as long term resident outpatient patients. We will once again stay in one of the onsite apartments and prepare ourselves for the upcoming treatments. My understanding is that the tentative plan starts with a set of scans and radiation measurements / markings. Radiation itself will start a few days after the prep is done, and the Angiogenesis inhibitor treatments will start at approximately the same time.
I will update the blog again within a week. Until then, keep on keepin' on with God in our hearts and His courage in our souls!
3 comments:
Wonderful and heartening news! Thank you for updating. So glad to hear you and William were able to spend Christmas at home. Much love to you.
Patty Robertson
It's great to hear you have had time at home and that William is doing well. We will continue to pray for your family.
Marie Foley
What a great looking kid! I know God is watching over you! My friend is 53 and is doing well at MD Anderson in Houston.
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