Much Anticipated Scan Results

On Tuesday,William had his PET scan, and the following day I received the official report via email from our amazing Dr. Clarke Anderson.

"HEAD AND NECK: There is normal distribution of uptake within the face, salivary glands, oral cavity and neck. .

CHEST: Previous non-FDG avid diffuse interstitial infiltrates have since cleared.. No abnormal chest sites of FDG uptake is seen. Normal myocardial uptake is seen

ABDOMEN AND PELVIS: Stable scattered rounded low-attenuation non-FDG avid liver defects remain present consistent with treated metastases. No new FDG avid lesions in the liver are seen. Again noted is moderate splenomegaly which is not hypermetabolic. There is a new rounded focus of FDG uptake SUV maximum = 5.0 localizing to the low left para-aortic retroperitoneum and correlating with developing 0.9 x 1.6 cm soft tissue mass adjacent to a posttreatment dystrophic calcification series 3/133, most consistent with new/recurrent metastatic tumor. There remains a coarse densely calcified residual rectovesical pouch deep pelvic mass that is non-FDG avid consistent with treated tumor series 3/157. However at the inferior most margin of the mass there is a subtle small focus of FDG uptake series 401/160 just cephalad to the normal bladder activity. It is not associated with a distinct mass on CT but subtle recurrent tumor here cannot be excluded. No other abnormal sites of increased FDG uptake in the abdomen or pelvis are seen.. Normal bowel activity is present

PROXIMAL THIGHS: No abnormal uptake identified. Bone marrow FDG uptake is homogeneous. REGISTRATION NONCONTRAST CT:[ Pertinent findings on the whole-body registration CT scans in addition to those outlined above include --right-sided central venous line in situ. [The visualized portions of the orbits are unremarkable in appearance. No enlarged nodes are seen within the face or neck. The visualized neck structures including the hyoid bone, cricoarytenoid, larynx, trachea, and thyroid gland are intact. No enlarged mediastinal or hilar nodes are identified. The heart and pericardium are unremarkable. No axillary adenopathy or chest wall lesions are identified. No pulmonary nodules or infiltrates are identified. No pleural effusions are seen. The gallbladder, pancreas, adrenals, and kidneys are intact . No retrocrural, or mesenteric adenopathy is seen. The stomach and bowel loops are grossly intact. No ascites is noted within the abdomen or pelvis.The bladder is unremarkable. No pelvic masses"

IN A NUT SHELL - ALL PREVIOUS CANCER/TUMOR IS STILL DEAD, BUT ONE SMALL NEW TUMOR HAS BEEN FOUND ON THE para-aortic retroperitoneum .

It's been more than 4 months since William had received any chemo, a blissful 120 days. In 3 we will once again travel down to the LA area and start the radiation process. As of right now it appears that the new tumor can and will be removed via surgery before they start radiation. I am anxiously waiting for the surgeon and radiologist to call me and discuss confirmed schedules and timelines.

Please keep praying for William's complete healing!


For the past few months I have been working on a design- a graphic that displays Williams journey through his treatments during the past 2years. What I came up with was a combination of a treble clef, celtic cross, fleur de lis, and childhood cancer awareness ribbon. I posted a rough draft of the graphic on FaceBook and then a wonderful family friend, Don Juvet, put his amazing talent as an artist to work and drew this for us. Because of Williams affectionate nickname of Sir William (a title bestowed on him by Don) the graphic has been named Sir Williams cross :)

Don has also created a website (www.sirwilliamscross.org.) Please visit the website to read about the meaning behind each item in the graphic and what they symbolize :) The website was created as an online store, and a secure hub for donations. The store will be selling amazing items (most of which are handmade) donated by our friends and church family. All of the funds will be put towards the expenses of Williams treatment and our continuous travel between Placerville and City of Hope Hospital (Los Angeles).

I want to thank everyone that has continued to send William words of encouragement and letters in the mail, receiving your correspondence does help with his healing process and certainly places a big smile on his face. Upon our return to the hospital, we will no longer be living in one of the on-site apartments instead, we will be moving back to the Ronald McDonald House in Pasadena. If you wish to send William future mail, cards, and/or words of encouragement, please do so by using the Pasadena Ronald McDonald house's in address (Located on the Contact Us Tab)

As always, this is Williams's journey and we will Keep on, keepin' on with God in our Hearts and courage in our souls.