Last week William started complaining about tummy pains. At first we though the pain was associated to his new found intolerance to lactose, so I changed our diet. Unfortunately, by Thursday morning William's pain had gotten worse, his appetite had disappeared and he lost approximately 3 pounds (he was at 53 pounds the previous week)
On Thursday night William was admitted into the Helford Hospital at City of Hope. On Friday morning Randell drove down to be with us, and on Friday afternoon William had laparoscopic endoscopy (at both ends). The endoscopy revealed that William had a bowl obstruction. The doctor cleared the obstruction; we were also told that William appeared to have a lower bowl paralysis. Randell and I were told that although the new diagnosis could be serious, it was nothing overly concerning, and the doctor was confident that we would be able to treat and heal William….. Unfortunately, it would appear that William’s little body is hiding something a little more difficult to diagnose…. Long, long, long story short – the bowl obstruction has been cleared and treated however the pain in William's tummy is getting worse. Even with a "happy button" to give him the needed fentanyl as needed for pain, and a constant IV infusion of pain medication, William's pain is barely being managed. The doctors ordered some additional scans this afternoon - the fear is that there is a new tumor that has sneaked up on us and is causing some serious discomfort....
I will post an update once the scan results are made available and discussed.
2 comments:
dang it !!! I'm so sorry. It's alwayas somwthing. I will send up my prayer for you guys. I hope you get some good news. I think of you often as we both head down this DSRCT road. please take care.
Janae Nielson Cody's mom
We are praying for him with everything we have!!!
Matthew and Gina Torres - Joshua's parents from City of Hope
Post a Comment