Travel bugs....Within 24-hours after landing at LAX last week I had a runny nose that I nursed with Zycam and Sambucal. By Friday afternoon I felt really groggy and was not allowed to see William. While I was at the hotel doing laundry Will went to the fishpond with his parents and Grandpa. Randell carved William’s name in the Bamboo. And Grandpa was trying to catch the Koi with his hands. The turtles were a lot easier to handle. After an hour of sunshine and 85degree weather Will was energized and the family enjoyed a movie together before bed time.


It is Sunday, the Zycam did its job, and Jacques and I are back with William. The time with him is so bitter-sweet. I drink in every moment. When cuddling next to him on his hospital bed I try to imprint in my mind the feel of his hand in mine. I kiss and smell his head and cannot stop my tears. Today William sleeps a lot. When he is awake it is for 15-20 minutes at a time. It is the combination of the Fentanyl patch and Dilaudid pill he is on – both pain killers and narcotics. The coughing is also getting worse and every now and then Will wakes up with blood in his mouth – his platelets are very low and his throat is bleeding.

We don’t really try to control any situation and plans are discarded easily in exchange for something that Will wants to do. This afternoon while grandpa was cuddling with him on the hospital bed William made a remark about the hair growing in Grandpa’s ears. Grandpa blamed the hectic business travel schedule for falling behind with his grooming and told Will that if it bugs him so much he must pull the hair. Lois passed Will the tweezers and the grooming started.
It is good to hear them all laugh.

We still plan on checking out of hospital tomorrow. Just hope that the medical staff agrees that Will is okay to go without IV.

Happy week to all of you. Grandma Sally.

Will grooming Grandpa