Just another day

All the Facebook messages and texts and emails have let us know that the lack of news from our side is frustrating and worrying to most of you. It is safe to say that William’s progress is good. He was in ER on Wednesday with pain out of control, but otherwise Lois manages to keep his pain under control 99% of the time. Her mother’s instinct is trained and very good and we have learned to trust her with decisions regarding William’s treatment. The narcotics have side effects; lack of appetite is just one. When William eats something there is a round of high-fives.


We mostly stay home and do what William wants to do. Most of our time together is in the family room around the fireplace, TV, Xbox and Wii. Lois does some reading after Will’s bedtime. That is my ‘me’ time too and once or twice we crossed paths after midnight on my way to the refrigerator. We don’t have any conversations anymore about what is happening here. Honestly – I have no desire to share my most sacred feelings. I don’t even ask questions anymore. We talk about the weather, what we can feed William next, has he taken all his pills, the dogs, news from family, who is going into town next, and tidbits from Facebook. We do what we have to do – we go with the program.

I am thankful for my job – for the best part of the day I can ‘escape’ into my job. It helps me keep some balance and also saves me from mental boredom. A couple of times while I was on conference calls or just doing admin Will would come and sit next to me and just lean on my shoulder – just sitting. Quiet.

It is Sunday afternoon and William and I are sitting in front of the fireplace watching cartoons and William is stacking all his coins in $10 heaps.

I don’t know what else to write and asked Sir William for news he wants to share with all of you. Well here we go: “ Tell them I won $15 on a lotto scratcher today…. Breakfast at the El Dorado Café was okay…mmmm…Grandma, I don’t know what else..”

His dad calls him to the workshop to help him finish building that new gun. The coins go unceremoniously back into the bag. He will start counting them again later tonight.