Day 7

Day 7 Part 1. I (Lois) spendt the night in ICU with William and it was the most restfull night that we have had since we arrived 7 days ago. The catheter is extremely uncomfortable but because William has it in we were all able to get some actual sleep. The nurses in ICU are FANTASTIC. They are all so eager to keep us up to date and educate us on the information. Because this is such a rare cancer (less than 200 people have ever been diagnosed with it) we are all learning together.  Some of the medical articles that we come across are scary but, then we also come across articles about survivors that were diagnosed at William's age and are now 18 and cancer free. There is a ton of hope out there! My mom found a Dr. in NY that has apparently treated three other DSRT cancer patients. We called him yesterday and left a voice mail message yesterday and hopefully he would be able to consult with our medical team. Thanks for all the prayers and emails.