Day 8

Day 7 - 3rd update by Sally. William's left arm and leg muscles are hurting and we had the therapist out here to assist with exercises and massage. It has been 48 hours since he last moved. Not sure what is causing the pain. Could be any of the medicine - he has received 28 different medications by now, or one of the Tumors are pressing on the nerves somewhere. One of the therapy dogs are also coming to visit this afternoon and we hope to convince William to get up and sit on a chair and either walk with the dog or thrwo a ball and play catch - he has to exercise as the passive lying in bed is not good for the lungs and heart. Can not afford any weaknesses now - he has to stay strong. I did some research and found Dr LaQuaglia from NY. He is the Dr that has treated more DSRCT patients than any other Dr. His patients also have the best survival rate. I contacted him and spoke to his PA. Dr LaQuaglia and William's Dr Lee communicated with each other this morning and are exchanging information about Will's condition. I will get a DVD later today with Will's X-rays and other info and Fedex it to DR LaQ. this afternoon. What an amazing man to take time from his busy schedule to help DR Lee and William. If we have to move William we will - but Dr LaQ will hopefully make it possible for the staff here at Sutter to be knowledgeable and have access to the latest and best information they can get. We want them to be successful not just for Will but also for the next patient that has DSRCT. We need those skills here in Sacramento. Day 7 - 2nd entry done by Sally. William is looking so much better this morning. The first round of chemo is done. His heart rate is avg 145, blood oxygen level is 98%, Resp/minute avg 28 and blood pressure very normal and good. Overall a great set of numbers compared to the last 6 days. His sense of humor is back and he made us laugh with a dry remark this morning but energy level is low - he does not want to play snap with me this morning :-( Every new day is a day that the Lord has made and we will rejoice in this day and say thank you for the wonderful blessings that comes in small but powerful dosages. We got this below email from Beth Higgin's sister-in-law Kasey - I wanted to share our Easter Sunday service with her, since it included William. Obviously William's been on my heart and I've been praying extensively for his miraculous healing. I contacted every prayer warrior I know. I also contacted my Pastor, since he's been an integral part of my healing since my walk through breast cancer. Anyway, I left him a voicemail on Friday night, asking him to pray for William if the Lord laid him upon his heart. During our worship service this morning, Pastor announced that he was going to do something unconventional. He said the Lord laid something on his heart. He started talking about William and his diagnosis. Please understand that this is not common! We have a lot of prayer chains and emails that we receive asking for prayers - it's not common for Pastor to bring them to the congregation each Sunday - let alone Easter Sunday! Anyway, he asked the congregation if we would pray for William, and quickly started speaking out a prayer for William's miraculous healing and for all the cancer to be removed from his body. The entire congregation was shouting out in agreement that the cancer would be gone. Then he asked us to think about William as we sang our next worship song which was "Hosanna in the Highest". He stated that Hosanna means One Who Saves and then proceeded into the song. It was very emotional for the entire congregation which was bloated in size due to the Easter holiday. The Holy Spirit was heavy in that room! Immediately following the song a lady started to speak.(Our congregation allows people to speak as they feel led by the Holy Spirit.) While I don't remember all the details of what she said, I do remember her loudly pronouncing God's Word. She was saying, "I am the Creator of the Universe. Do you think I am not big enough to take care of your issues? There is nothing I cannot do. Remember, there is nothing I cannot do." Of course I was crying, as well a lot of other people. That even included the very young men on the worship team. It was incredible. I just wanted to let Loiss know that many people are praying for her little boy, even people she doesn't know. Many are touched by him and praying for his miracle. I wanted to remind her that Jesus is involved and is touching the hearts of many on her behalf. I'll continue to pray as I'm sure many more are behind me. Send her love, Kasey. Thank you Kasey for sharing this - my faith and love got a boost. Keep on sharing - Sally We will update you again later this morning after talking to Dr Lee.