Wednesday, February 16, 2011

Gloomy winter days

William is on day 8 of his protocol and I am sorry to say that the side effects are creeping in on us.
William is on a 24/7 feeding regimen of Zofran and Reglan (+benedryl) both of these drugs are used to prevent and/or stop nausea, unfortunately their side effects are headaches UGH!  Dilaudid, William's pain medicine,  is usually the drug of choice for his headaches and other pain; however, Dilaudid causes nausea so we are staying clear of that. Tylenol would be great for stopping the headache but unfortunately it could also mask any fevers. So, the next best option is Motrin but, Motrin does have the side effect of causing serious bleeding in chemo kids.... So, the big question for the day is WHAT DO I GIVE WILLIAM THAT WILL MAKE ALL THE PAIN GO AWAY AND HAVE MINIMUM SIDE EFFECT?  I have called the doctor and I am waiting on him to call me back with some hopeful answers, in the meantime all I can do is rub his head and give him hugs.

This morning I noticed that William's knees and ankles all have small bruises from them rubbing together while he sleeps. So, when you add it all up:
bruising+tears+tired+nausea+headache+constipation = BAD CHEMO SIDE EFFECT

Tomorrow afternoon William and I will be returning to the hospital for transfusions, hopefully he feels better after that. It is the worst feeling in the world when you, a mom, can  do nothing to make the pain and chemo monsters go away. 

That's all for today.

Keep on Keepin on. Live Strong in God's promise of miracles and healing.

2 comments:

Candace said...

Give him a BIG HUG from us and let him know we are thinking of him.

Love and prayers to you all

Love the Kowalla Family!!!!!!

Kendra said...

Try Fentynal. This works great for Taylor. Hugs and Kisses for william
Kendra n Taylor
caringbridge.org/visit/taylorhargrove