Day 10 of Chemotherapy round 12.
Yesterday William was scheduled to receive platelets; however, when we arrived on the 5th floor
(pediatric outpatient) we discovered that all of the rooms were full and the waiting room was filled with 6 additional families waiting for beds to open up. We decided to not wait around and chance William being exposed to hospital germs, instead we decided that it would be best to return in the morning. So, here we are on the 5th floor waiting for William's platelets to arrive. The transfusion of platelets is normally a 30minute to 1 hour process but, we usually wait an additional 2-3 hours for the the paperwork to get completed, platelets to arrive, benadryl to get administered etc. etc. It is normally during this waiting period that William and I do homework and catch up on his cub scout activities.
(pediatric outpatient) we discovered that all of the rooms were full and the waiting room was filled with 6 additional families waiting for beds to open up. We decided to not wait around and chance William being exposed to hospital germs, instead we decided that it would be best to return in the morning. So, here we are on the 5th floor waiting for William's platelets to arrive. The transfusion of platelets is normally a 30minute to 1 hour process but, we usually wait an additional 2-3 hours for the the paperwork to get completed, platelets to arrive, benadryl to get administered etc. etc. It is normally during this waiting period that William and I do homework and catch up on his cub scout activities.
This morning's activities in the room is different, William is sleeping off a strong dosage of Dilaudid and I am desperately trying to catch up on some much needed insurance paperwork. UGH! When we arrived at the hospital this morning William had a slight low grade fever (99.0) If his temperature rises above 100.5 Next week William is scheduled to start phase two of the new chemo regimen. Phase two is the outpatient combination that we get to do at home and on the 5th floor. Fortunately this combination allows us to spend nights at home with Randell. Unfortunately, we are not sure how William's his body will react to receiving the two two different combinations(Carboplatin and VP 16, and Irinotecan and Temador), so close to one another. Last month William had no side effects with the Irinotecan and Temador, but then again his body also had 30 days of rest and recovery in between the previous Carboplatin and VP 16 chemo treatment, this time there is only a 12 day break. I can't help but to get anxious and scared. I like to be prepared for all of William's medical needs, unfortunately it is hard to be prepared for the unknown.
My mom will be coming to California in March- WOO HOOO - During her stay here Randell and I will be able to take a much needed break. Together we have done an amazing job in coping with reality but, we are both tired and in desperate need of RandR. On March 25th GiftToCure will be hosting a Masquerade Gala at the Arden Hills Spa and Resort. The event will be strictly black tie (and mask) and will focus on the awareness of DSRCT and much needed research funding. A silent auction, live music, and local celebrities are a few of the evenings attractions ;) Arranging an event of this magnitude is exhausting. Stacie Hubbard, one of the wonderful volunteer's with GiftToCure has taken on this project and sacrificed a lot of her time and energy...Thank you Stacie for being so kind and gracious - You are truly and angel!
William and I want to send out a special thank you to all of our friends at Chevron in Houston - This group of strangers has in the last few months become a big part of our lives. Their unconditional love, support, prayers, positive words of encouragement and kindness has made a big difference in our lives. They say everything is bigger in Texas, well this is true because this group of strangers have the biggest hearts. To all of our faithful prayer warriors, supporters and friends in Houston, Thank you! Thank your for William's gracious gifts,kind cards, and Thank you for the love!
We appreciate every one's continued prayers and love! It is the kind words that get us through the toughest times!
Keep on keepin on! Live Strong in God's unconditional love and the miracle of healing!
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